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Lisa vs. Social Security
(Below is a sample chapter from the book I am writing. It gives you a quick idea of what life is like for me now. I would enjoy hearing your comments.)Alec has been pacing back and forth on the same 15...
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Job Shadowing
My husband follows me where ever I go. Now those of you whose husbands do not have HD probably think I mean that he tags along wanting to be with me or that jealous and possessive he actually gets in...
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The blind poodle
The blind toy poodle is annoying me. It is 5 am and I am standing bleary eyed on my back deck watching as my three dogs run out into our large fenced in back yard for their morning duties. The blind...
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The Hoop-a-thon
(Below is another sample chapter from my book. This took place shortly after Alec was officially diagnosed. I was in the grieving process, a process which is never ending with this disease. This was my...
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On Being Overwhelmed
If I had to name the biggest obstacle I have to overcome it would be the condition of consistently feeling overwhelmed. I have good reason to fell overwhelmed. I have two teenagers, one 7 year old,...
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The Circus
I love the circus. It's loud and colorful and exciting. When I was younger I wanted to run away and join the circus. I didn't really have an interest in doing any of the acts, I just wanted the...
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Too Many Pets
This incident took place 4 years ago when I was trying to sell my home in New York. The strain of working two jobs and caring for a family had left some areas of my life in chaos.Too Many PetsI don't...
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The Sign
“The events of this year proved to me that there is a point at which perseverance is no longer a virtue but at best an exercise in futility and at worst a means of suicide.” - meI can’t believe it has...
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My Hero
It was barely 8am on Thanksgiving day and I padded into the kitchen, my bleary eyes focused on the hot pot of coffee waiting. Alec was standing at the counter his back to me his beautiful broad...
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The Betrayal
I know- it is long time between posts.. Somewhere in August when I had Alec committed to the State Mental Institution, I stopped breathing. Grieving is like living in a foreign country where nothing is...
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Dating at the Nursing Home
To find ones self in a mental institution is, I believe, the sorriest state that can be achieved on this earth outside of being burned at the stake, buried alive or on "the rack". Even those last three...
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A thank you to all
I am very deeply moved by the out pouring of love and support from all of Alec's friend's and community. Huntington's is not only a cruel disease but a brutally long one. Sometimes I find myself...
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Halloween Home
The happy, upbeat, mechanical tune jars me awake. I look at my cellphone on the bedside table, it is 4:23. I know who it is. "Ms. Brough?" "Yes." "This is the CTU at CHR, Mr. Brough is awake and he...
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Apple Picking
Big, sticky, crisp caramel apples. When I think of Fall I see them in my mind and my mouth salivates. Morgan made one batch for us last week, which was eaten in the same day. The tradition has been...
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Falling
I had settled into the sofa. No, I had melted into the sofa, my body deliciously relaxed. My eyes were fixed on the large flat screen TV and I was experiencing the euphoria which the show "Pawn Stars"...
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What my Husbands Friends Taught Me About Love
Free at last, free at last, thank God Almighty I'm free at last! I am referring to my fancy new wheels. I have been spotted recently tooling around town in a 2000 Toyota RAV4, with the windows down...
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Thanksgiving
By 4am Thanksgiving morning I was crying so hard I was vomiting. Alec had been calling over and over all night long."Thanksgiving pass? Home? I love you.""I love you too baby, but we are not going to...
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Unstoppable
Unstoppable I thought Alec might enjoy a movie, so for our Saturday Date I arranged to have his attendants meet me at the Regal Theatre. I had planned on seeing a comedy but when we arrived I realized...
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The Gift
The holiday season is a time of reflection for me each year. I am reminded as I prepare for each celebration of just how rich my life is and how filled with love. All of you who have supported our...
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Alec's Funnies
I was digging through the closet and I came upon this box of notes and letters Alec left for me each day when he was well. He was always so funny and made everyday life so happy. I miss his silly...
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Alec's Beef Jerky
I was mixing up a batch of Alec's Beef Jerky this morning as a thank you gift for a couple of angels that came and cleared out the felled trees from my backyard, when I thought that this is something...
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Thank You Irvington Angels!
To the Marxist Society and all my other angels from Irvington and the Class of 1977, Wow! I am blown away by your incredible generosity and love. Twenty thousand dollars is a windfall for anyone but...
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